This report draws on data from the National Child Mortality Database (NCMD) to investigate deaths in children related to consanguinity and chromosomal, genetic and congenital anomalies, and to draw out learning and recommendations for service providers and policymakers.
This NCMD thematic report analyses child mortality due to chromosomal, genetic and congenital anomalies, or where the child is known to have consanguineous parents; investigates factors associated with these deaths; and identifies common themes, to help inform policymakers, commissioners, those providing services to children and young people, and those involved in reviewing deaths of children and young people.
We are aware that the content of this report may be distressing for some readers.
The authors of this report wish to acknowledge that the death of each child is a devastating loss that profoundly affects bereaved parents as well as siblings, grandparents, extended family members, friends and professionals. They also wish to thank all the families who shared their data and experiences, and the Child Death Overview Panels who submit detailed evidence on every death to the database.
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