NCMD represents the culmination of years of work by dedicated professionals across multiple organisations” Vicky Sleap, NCMD

There are two strands to the governance process for the NCMD programme of work. The first is regular contract review meetings with our funders, HQIP, to report progress against our deliverables and ensure the contract is proceeding on time and to budget.

The second is input from the programme’s Steering Group and Professional Advisory Group, with input from a Parent, Patient and Public Involvement (PPPI) Group, which includes representatives from national organisations, charities, parents and patients.

Terms of Reference

You can find out more about the role that each group plays in our governance by reviewing their Terms of Reference below:

Parent, Patient and Public Involvement Stakeholder Advisory Group

Professional Advisory Group

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