Data security

 

NCMD’s C-A-R-E pledge to bereaved families: Your data will be used only for our core purpose of learning lessons to improve and save lives 

The National Child Mortality Database (NCMD) collates the data arising from the reviews of all child deaths in England by the Child Death Review Partners (CDRPs) via their Child Death Overview Panels (CDOPs) or equivalent. This is a statutory process and provision is made within the Children Act 2004 for the collection and processing of this data without consent. 

More specifically, we collect data on all children born in England who die before their 18th birthday. We do not hold data relating to stillbirths or legal terminations of pregnancy. 

NCMD’s national data collection started on 1st April 2019, and includes information about children who have died since 1st April 2019 as well as information about those who died prior to 1st April 2019 where their death review process was still ongoing on that date.

The process

Personal data on the child and any significant person in the child’s life is sent to CDOPs from all agencies who had contact with the child during their life, or after their death (see the NCMD Data Flow Diagram). CDOPs then enter the data into the NCMD, either manually, through a secure web portal, or automatically, through a web-based application programming interface (API). We quality assure, scrutinise and analyse the data derived from the database and provide timely, accurate and informative outputs to relevant. Find out more about how we keep our data safe and secure by reading our Privacy Notice.

Further information and complaints

For information about the data we hold or data security, please contact the NCMD team by email: ncmd-programme@bristol.ac.uk.

Individuals have a right to complain to the Information Commissioners Office (ICO) if they think there is a problem with the way we are handling their data. The ICO is the UK’s independent authority set up to uphold information rights in the public interest, promoting openness by public bodies and data privacy for individuals. The ICO website is https://ico.org.uk.

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