Webinar: Tuesday 22 February, 1030–1145

Online, with free registration in advance

​Research has shown that on average, people with a learning disability and autistic people die earlier than the general public, and do not receive the same quality of care as people without a learning disability or who are not autistic.

That’s why the National Child Mortality Database (NCMD) works closely with Learning from lives and deaths of people with a learning disability and autistic people (LeDeR). Together, we are doing our best to collect better data on the problem, which will mean a better understanding and better solutions to help us fix it.

Child Death Overview Panels have a vital part to play in this process, and this session will help professionals involved in the child death review process understand how the LeDeR and child death review processes interact, and what they should do when a child with a learning disability dies.

In the session we’ll hear from Vicky Sleap (NCMD Programme Manager), Carrie Sykes (Health Inequalities Lead Children and Young People Team) and Louisa Whait (Senior Programme Manager for LeDeR) from the Learning Disabilities and Autism Directorate in NHS England. They will explain what LeDeR needs from child death review data, how learning disability is defined, and give an overview of how NCMD and LeDeR work together and will work together in the future. There will also be an opportunity for questions.

This event is aimed at professionals involved in child death review, and is free and open to all with registration in advance. If you’d like to attend, please register here. Please note that the session will be recorded and shared by NCMD to support future learning.

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