Governance
There are two strands to the governance process for the NCMD programme of work. The first is regular contract review meetings with our commissioners, the Healthcare Quality Improvement Partnership (HQIP), to report progress against our deliverables and ensure the contract is proceeding on time and to budget.
The second is input from the programme’s Steering Group and Professional Advisory Group, with input from a Parent, Patient and Public Involvement (PPPI) Group, which includes representatives from national organisations, charities and parents.
UPCARE
The Understanding Practice in Clinical Audit and Registries (UPCARE) tool is a protocol for audits and registries. It has been designed to provide a “one-stop” summary of the key information about how clinical audits and registries have been designed and carried out. It is designed help users of audit/registry data and audit/registry participants understand the methods, evaluate the quality and robustness of the data and find information and data that is most relevant to them. You can download our UPCARE information at both workstream and programme level.
Terms of Reference
You can find out more about the role that each group plays in our governance by reviewing their Terms of Reference below:
Parent, Patient and Public Involvement Stakeholder Advisory Group
Steering Group
Professional Advisory Group
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