Programme Manager for the NCMD
Sylvia Stoianova is the NCMD Programme Manager job-sharing this role with Vicky Sleap. She brings 15 years of experience, ranging from clinical audits and other measurement driven quality and service improvement projects working for Acute Central London Trusts and at London clinical networks’ level, to national and international work in disease registration and public health.
Along with her role with NCMD, Sylvia also works part-time for Public Health England’s National Congenital Anomaly and Rare Disease Registration Service leading on data quality improvement projects. Sylvia holds a Master’s degree in Health, Population and Society from the London School of Economics (LSE) with a focus on epidemiology, health policy and planning and demography; she also holds degrees in International Relations and Linguistics from Sofia University.
She is passionate about reducing health inequalities and improving the life and well-being of children and people with rare diseases, and is committed to contributing to projects that can turn knowledge and data into action.