University of Bristol (lead organisation):
Bristol Medical School at the University of Bristol is a leading centre for collaborative and multi-disciplinary research in population and translational health sciences.
“The University of Bristol is very proud to be working with such a talented and committed group of people to bring our vision of the NCMD to life. This collaborative project brings together a group with strong expertise in the CDOP process, hospital mortality review processes, setting up and running national databases, legal processes surrounding data collection and sharing, secure building and hosting of databases specific to the child death review process, statistics, epidemiology and a proven record in quality improvement methodology, dissemination and education.” Medical School, University of Bristol
Other partners include:
QES is a specialist developer of web based and offline apps, supporting secure digital data solutions for a diverse range of public and private sector clients.
“I am tremendously pleased to be working with all our partners on this exciting NCMD system. It’s a challenging design and development project that we have no blueprint, as it’s the first of its kind. My colleagues and I are proud of the NCMD system we have provided to date and also look forward to being involved with its evolution over the coming years.” Rob Taylor, Managing Director, QES
UCL Partners is a partnership of world-leading academic and clinical research centres, NHS organisations, industry, patients and others committed to harnessing research to deliver excellent patient care.
“We’re proud to be working in partnership with Bristol and Oxford Universities and QES on this seminal work programme. The development of this National Child Mortality Database and the use of the intelligence it will produce will enable us identify modifiable care factors, spread learning, and support a reduction in child death in our local population and nationally.” Dr Charlie Davie, Managing Director, UCL Partners
Child Bereavement UK
Child Bereavement UK supports families and educates professionals when a baby or child of any age dies or is dying, or when a child is facing bereavement.
“Child Bereavement UK is delighted to be part of the steering group for the NCMD development project which will gather information about children who die before the age of 18 years. Child Bereavement UK supports families and educates professionals when a baby or child of any age dies and, working alongside our colleagues on the NCMD project, we aim to represent the families we work with to ensure the project progresses with the needs of children and families at its centre, with the ultimate important aim of learning vital lessons to help reduce potentially avoidable child deaths.” Dr Katie Koehler, then-Assistant Director of Bereavement Services and Education, Child Bereavement UK
Sands works to support anyone affected by the death of a baby; improve the care bereaved parents receive; and create a world where fewer babies die.
“Sands is thrilled that the NCMD is taking off. We were part of the consultation process to establish the database, and are now working with the steering group, putting parents’ voices at the heart of work. The death of a child is a life-lasting tragedy for parents; that tragedy is compounded when we do not learn what we can from deaths. The NCMD will make vital learning to save future lives a possibility.” Charlotte Bevan, Senior Research and Prevention Advisor, Sands
The Lullaby Trust
The Lullaby Trust raises awareness of sudden infant death syndrome (SIDS), provides expert advice on safer sleep for babies and offers emotional support for bereaved families.
“NCMD brings together work done locally to be able to give us a national picture, which is vital for SIDS deaths given the lower numbers we now see.” Jenny Ward, Chief Executive, The Lullaby Trust